Hello everyone. I am so sorry that it has been a while since I have been on but I have been very busy lately.
Well Serenity came home on Sept. 2, 2009. She is doing very well and is now 9lbs. Unfortunately on the same day that we brought Serenity home my oldest Destiny went into the hospital for Septic knee and ended up having surgery on her knee on Sept. 3,2009. Then 2 weeks later Destiny ended up with H1N1. Thank goodness she is doing very well now and we caught the H1N1 very early and started her on meds ASAP.
Serenity reminds me so much of Chloe that it makes it hard some days. It's almost like she knows what Chloe looks like because she is constantly staring at Chloe's pictures on the wall. I pray this means Chloe is around us. We just had her first birthday and I was a wreck on that day. Her angelversary wasn't quite as bad surprisingly. I think I just knew that it was her moment of peace. I still miss her everyday and find it hard to fight back my tears on a daily basis. I am trying to think of ways to do things in her memory to help other children but can't seem to find the right thing to do yet. I would love to start a fund to go towards finding a cure for children with Thanatophoric Dysplasia to live a full life so that parents do not have to go thru this pain. I want an awareness out there for Thanatophoric Dysplasia so that other parents are not hit with the shock of losing their child to a dysplasia that they had never heard of. If anyone has any ideas or suggestions please do not hesitate to contact me. I could use all the help I can get.